Beat Batten!

Batavierenrace is committed to BeatBatten! together with Topicus! You too, right?

Beat-batten


Beat Batten Foundation!

But what exactly is Batten disease?

You wish every child a good childhood. You wish every child to be able to play sports, play outside, make friends, grow up and live a nice life. But children with metabolic diseases have a very hard time doing this and often face severe complications.


Batten disease is a debilitating, fatal metabolic disease in children. Worldwide, it affects 1 in 25,000 children. If your child has Batten, nothing seems wrong until about age 5. This is followed by an accumulation of problems: Severe vision loss, seizures of epilepsy and memory loss. The disease is also called a form of childhood dementia. Children end up in wheelchairs and lose the ability to communicate. Inevitably, the child will pass away, which usually happens between the age of 15 and 25.

Because little is known about metabolic diseases and every child deserves a good future, the Batavierenrace is committed to the BeatBatten! Foundation. An initiative dedicated to funding hopeful research into the metabolic disease Batten, a disease that mainly occurs in children. Topicus and the Batavierenrace commit to this charity for several years to contribute to finding a cure.


Will you help?

Support Beat Batten!

As a team or as an individual you can help, whether you run with us or not!
Create an action page for your team at: https://www.inactievoorbeatbatten.nl/project/2023-batavierenrace and get your participation sponsored by your family members, friends and acquaintances.


During the Batavierenrace, hand in your plastic and cans in the designated containers. The proceeds of this action will be donated to BeatBatten!.

Beatbatten